Introduction

My Cancer Story -- Continues

My original diagnosis of ER/PR positive, Her2 Negative Stage2b - BRCA1+ with 5 positive nodes was in 2014. I had Chemotherapy, 4 AC and 4 Taxol, Bilateral Mastectomy, Oophorectomy, Hysterectomy, Expanders and full reconstruction - along with 35 radiation treatments. I was then declared "Cancer Free" in March 2015.

I was on Letrozole, daily, which I was told I would remain on it for 5 to 10 years.

However, on Groundhog Day 2017, I was re-diagnosed with Stage IV Triple Negative (TNBC) Metastatic Breast Cancer with a breast cancer tumor in my liver. As my first line of treatment, I joined a Clinical Trial - TOPACIO sponsored by Tesaro, which is a combined treatment of Immunotherapy and a Parp Inhibitor. The drugs are Niraparib (Parp) and Pemprolizumab (Immunotherapy). I have been on this trial since March 2017. ... Read More

Monday, October 15, 2018

There is no cure for Stage IV Metastatic Breast Cancer but only 5-7% research is focused on finding a cure - AND only 2% of Breast Cancer Patients participate in Clinical Trials to help find a cure. 

Estimates for funding for research for metastatic disease:  LOW

MBC focused research made up only 7% of the $15 billion invested in breast cancer research from 2000 to 2013 by the major governmental and nonprofit funders from North America and the United Kingdom.Metastatic  (MBC Alliance Landscape Report on Metastatic Breast Cancer10/13/14)
Only 5 Percent of Cancer Research Funds Are Spent On Metastases, Yet It Kills 90 Percent of All Cancer Patients [Science Daily, 6/2010]
Chart on Metastasis Funding:
metastasesfunding
Click to enlarge
Fewer than 8% percent of researchers mention the word ‘metastasis’ in their grant applications Unlocking the Mysteries of Metastases, January 2013, ACS website
“But as pointed out by ACS Scientific Council member Dan Welch, “Fewer than 8% percent of researchers mention the word ‘metastasis’ in their grant applications, in the context of actually working on the problem, …Figuring out how to prevent cancer – a key research focus today – would be the best approach, he agrees, but that’s of little help to patients who already have cancer. He further explains, “To prevent something, you have to know its cause. We have no idea why cancer cells spread, let alone what prompts them to disseminate throughout the body

Estimates for funding for research for metastatic disease:  LOW

MBC focused research made up only 7% of the $15 billion invested in breast cancer research from 2000 to 2013 by the major governmental and nonprofit funders from North America and the United Kingdom.Metastatic  (MBC Alliance Landscape Report on Metastatic Breast Cancer10/13/14)
Only 5 Percent of Cancer Research Funds Are Spent On Metastases, Yet It Kills 90 Percent of All Cancer Patients [Science Daily, 6/2010]
Chart on Metastasis Funding:
metastasesfunding
Click to enlarge
Fewer than 8% percent of researchers mention the word ‘metastasis’ in their grant applications Unlocking the Mysteries of Metastases, January 2013, ACS website
“But as pointed out by ACS Scientific Council member Dan Welch, “Fewer than 8% percent of researchers mention the word ‘metastasis’ in their grant applications, in the context of actually working on the problem, …Figuring out how to prevent cancer – a key research focus today – would be the best approach, he agrees, but that’s of little help to patients who already have cancer. He further explains, “To prevent something, you have to know its cause. We have no idea why cancer cells spread, let alone what prompts them to disseminate throughout the body


http://mbcn.org/research-funding/


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